A new procedure is being
addressed in which NJ Medicaid will limit the amount of time a parent can take
a residentially placed adult child home for vacations and holidays.
The rumor is 2 weeks per year. Medicaid is now playing a major role in the
CCW (Community Care Waiver) where there will be a "fee for
service". This works in most cases
where parents do not take the disabled child home at all. But, for those parents who are very
interactive with their disabled adult child, it is too restrictive.
The ones most seriously affected by this
change are the most severely disabled population. This change will devastate consumers who have
severe medical and behavioral disabilities and will cause a hardship on their
families.
Many of these clients are
placed very far from home and often can not tolerate a simple visit. A visit is perceived as an opportunity to go
home with the family and leaving without the disabled adult will cause
tremendous emotional and behavioral problems.
It is an inhumane concept and very cruel to those affected. I hope NJ Medicaid takes this into
consideration before implementing such a devastating change.
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