Now there will be a new breakdown of Autism into 2 groups. One is "true" Autism and the other will be "Social Communication Disorder". There will be an elimination of Asperger's Syndrome and PDD-NOS. I have the DSM-IV manual. I purchased the book when my 3 children were diagnosed with PDD-NOS and Autism.
My middle child was the first one to be diagnosed at 3 years old. He was severe, as severe as they come: severe seizures, severe behavior, non-verbal, the works. How severe is severe? He was in an out of state institution for 3 months until he deteriorated and I took him out. He spent a month at a time in a crisis center. He has chronic problems at his group home now. As far as seizures, they were as long as 5 hours long on Felbatol, vomiting blood and having a spinal tap during a seizure. Unfortunately he had a big surgery last year on the parotid gland.
My younger son has moderate PDD, but also has seizures, severe anxiety, and other medical issues. He is very socially limited. He has a very concrete way of thinking and misinterprets information.
My daughter is milder PDD. But, anxiety and the limiting social aspect of it prevent her from crossing over. She has a tremendous imagination and she looks much younger than her chronical age.
They are all in programs that help them thrive as much as possible. What will this new classification do? Where will they draw the line?
I saw part of a news segment of PBS with a doctor from UMDNJ who is against the new classification. He said it will make things worse. Right now he said 80% of those diagnosed are Autistic and the current breakdown of the disorder is accurate and less confusing.
I have a feeling some children are going to be classified as Autistic, that aren't really, by doctors who want them to get the help they need. It will be bad for the future generation of children with Autism.
I thought they were working to sub-divide the Autism Spectrum further, instead they are just slopping it together. What happens to programs that cater to Asperger's Syndrome? They are in a class by themselves.
What will happen to PDD-NOS? Social Communication Disorder just doesn't do it for the disability. It is a hell of a lot more than that.
Another words, it still has to be broken down somehow:
Like 100% Autism, 75% Autism, 50% Autism, 25% Autism......
Years ago they broke down the category of MR to Mild, Moderate, Severe, and Profound.
That made sense to me. Why are they not doing it with Autism and make it easier.
Autism comes with other disorders too. It is usually a smorgasbord of disabilities.
Who is behind the drastic Autism change? Parents can't cope with these changes. It sounds like a lot of Doctors will not be able too either from the news report from UMDNJ.
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